In a recent post on A Sweet Life, “Neonatal Monogenic Diabetes: Cameron Lundfelt’s Story,” Cameron’s mom describes the overwhelming standard of care given to young children with garden variety T1D, “I was always concerned about when did he last eat? What are his sugar levels? When is the next time he has to have a shot? Did I give him too much insulin at the last meal? Did I not give him enough insulin? I lay awake at night wondering how I could have done better at keeping his sugars ‘within range.'” Through Cameron’s mom’s diligence, it was later discovered that Cameron has a rare form of diabetes caused by a genetic mutation that can be controlled with oral medication, but all parents of children with diabetes know the fears and worries she describes.
November is almost over, so Diabetes Awareness Month is coming to a close, but the end of the year holidays are starting. Diabetes Awareness Month juxtaposed to the holiday season means awareness morphs back into silent difficulties for so many families living with T1D.
Here we are, at the end of November, taking a deep breath and sharing the life we live in two hour increments during each day and night of all twelve months.
As we enter the holiday season, we’re glad for:
- Fredrick Banting and Charles Best, discoverers of insulin
- Dexcom, a continuous glucose monitor
- batteries that power insulin pumps
- insulin pumps
- the Diabetes Online Community
- Children with Diabetes, Friends for Life Conference
- Henry’s dedicated and caring preschool teachers
- Ed Damiano, Denise Faustman, JDRF
- Henry’s sense of humor
And after all the chaos, illness, and destruction, the last thing to fly out of Pandora’s box: